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Steve Shattuck
Reply with quote  #16 
OK.  Pulseox meter is in and I've used it already.   My dad checked out tonight at 97%.  Night time is his better time.  I'll be interested (and hoping) that in the morning, when he is feeling totally drained and not able to move around, that his oxygen level will be low.  Then I would have something concrete to go to the docs with.  I'll will let all of you know.  
Thank you
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Steve Shattuck
Reply with quote  #17 
Used the Pulse ox meter on dad this morning, during his usual down, "bad" time.   Dad walked into the living room with his Rollator and sat on the couch.  When I put the pulseox on him, my initial reading was 90%.  It bounced between 90% and 93% for a bit and the pulse was fairly irregular.  After a couple of minutes, he laid down and within a few minutes, his reading was 97%.  I'll test him more tomorrow morning.  I'll check his reading before he gets out of bed and after he is up and around and then again when he lays down on the couch.  (That all takes place in about 20 minutes).  Laying down on the couch comes after sleeping over night for about 12 hours.
Sigh........
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Steve Shattuck
Reply with quote  #18 
More results on spO2 measurements
This morning, I put the meter on dad's finger when he was seated on the couch, about 30 minutes after he got up.  It was difficult to get a reading but eventually it popped up with an average of about 90%.  The screen went blank several times during this time, I believe because his pulse was irregular.  
I had him stand up, holding onto his walker and for about 90 seconds, I could not get a reading. 90 seconds was as long as he could stand without having to sit down and that was a struggle.

I then had him sit again, with a similar result to the first time I had him sit.

I then had him lay down on the couch and I came back in about 5 minutes to re-test.   On the couch, lying down, his pulse seemed much more steady and his spO2 reading was up in the area of 96 and 97%.

I was taking my mom's and my reading between these tests to ensure the meter was working.  Our readings always came out in the 97% and above.

My mom will be testing more during the day today but I wanted to give you some preliminary results.  From what I've seen, to me, it seems to make sense that he feels better when he's laying down because it looks like he's getting more oxygen when he is.
Would adding supplemental oxygen help him out?
More to follow.
Steve
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Cher
Reply with quote  #19 

Steve, how is his blood pressure? From my experience, doctors don't worry until pulse ox is below 90% unless there is pneumonia or another breathing issue.

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Cher
Reply with quote  #20 

Steve, how is his blood pressure? From my experience, doctors don't worry until pulse ox is below 90% unless there is pneumonia or another breathing issue.

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Janice
Reply with quote  #21 

I am no Dr or Nurse, but it sounds to me like it may be more of a problem with the oxygen rich blood being circulated. Has he been to a Cardiologist recently or is his GP the one treating the A-Fib? A-fib allows the blood to pool and it may not be pumping through the body correctly.

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Janice
Reply with quote  #22 

I am no Dr or Nurse, but it sounds to me like it may be more of a problem with the oxygen rich blood being circulated. Has he been to a Cardiologist recently or is his GP the one treating the A-Fib? A-fib allows the blood to pool and it may not be pumping through the body correctly.

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Janice
Reply with quote  #23 

Hmmmm...how did that happen????

 

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Cher
Reply with quote  #24 

The website is a little iffy today. Happened to me too!

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Steve Shattuck
Reply with quote  #25 
Dad's BP has been pretty good each time we have check it, which is usually a daily event.  We've  checked it during these episodes of extreme weakness and it's been ok.

He was under the care of a cardiologist for his A-Fib but all we did with them was go in to their office 2x per year where they would tell us, "well you look great and your numbers look good".   We kept telling them he has no energy but that never got anywhere.  Now is PCP is handling things.

More results from the pulse ox meter from today:
In bed prior to getting up:   98/68 with the first number being the oxygen saturation and the second the pulse.
Standing up, just out of bed: 92/88 and the readings came up within 30 seconds
About 30 minutes later, right after breakfast:
         Sitting: 86/29 (and feeling very weak)
         Standing: (could not get a reading after 90 seconds of standing which is all dad could tolerate.
         Laying down (after making his way to the living room)   98/78

It seems there is a definite correlation between low readings and him feeling at his worse.  I have sent this data to his PCP but being the weekend, don't expect much of any suggestions until perhaps Monday.  
Would added oxygen help?
Could digestion of food be something that is driving his oxygen saturation down?
I'm grasping for anything here.  Other than being extremely tired, dad's fine.  I'd love to find a way to give him more energy.
Steve
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JeanS
Reply with quote  #26 
Steve, I wanted to say I am impressed and glad that you are this kind of advocate for your father. He should be proud of you.

I understand the battle of the docs, although in a different sense, but only those close to the ill "patient" truly know that there is something wrong.

Kudo's to you for trying all you can. And sadly, sometimes there is nothing anyone can do, but go with the aging process. Until you have exhausted yourself and all avenues, then you know you have done all you can. I wish you some kind of results that will help.

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Steve Shattuck
Reply with quote  #27 
Thank you Jean.  That was kind. 
I do what I can for my parents.
Steve
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Lizzie42
Reply with quote  #28 
My mom's doctor gets itchy if her blood ox falls below 90.  She had a spell of this a couple of years ago, and I suddenly had a house full of oxygen equipment.  In her case, she refused to use it unless I absolutely insisted, but she did eventually get better and all the equipment disappeared.  It certainly sounds to me as tho some supplemental oxygen would be helpful at those moments when he feels so weak.  Medicare should pay for it all ... ask the doctor.

I add my praise for all you're doing!  The doctor is much more likely to "listen" to hard numbers than to "worry talk".  You're doing right by your dad.
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Steve
Reply with quote  #29 
Thanks Lizzie. 
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Steve
Reply with quote  #30 
Ooops.  Hit the send button too soon I guess.
Curious as to what caused your mom's low ox and on the other side of the coin, how did she over come it?
Again, thanks for the kind words.
Steve
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