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CaregiverCollective

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Posts: 3
Reply with quote  #1 
Hi everyone - When I was 32 I began caring for my dad, who was suddenly diagnosed with PSP (a degenerative neurological disease). I wrote about my experience as a young adult caregiver for Cosmopolitan. I've come to realize those of us under-40 and caring for family experience caring differently and often feel isolated. If anyone on here relates, I'm hoping to connect! I've created a Facebook group, Caregiver Collective, to share resources and support. We'd love to have you!  

https://www.facebook.com/groups/CaregiverCollective/

And I'm so glad Our Aging Parents' forum exists - resources like these make things a bit more comforting [smile]  
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Val
Reply with quote  #2 
I just read your cosmo article and felt like I was able to relate on some points! Than you for sharing! I'm 26 and my mother has parkinsons disease and like you, I never considered myself to be a caregiver until I realized that when I visit on weekends, she depends on me very much to get up from a fall or to help her do her daily chores.

It is extremely hard to see her in this state as she is always in pain and I feel helpless. But I am glad to see that there is a community out there that knows what one another is going through. [smile]
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CaregiverCollective

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Posts: 3
Reply with quote  #3 
Sorry to hear about your mom, Val - a disease like Parkinsons can be so tough, I definitely relate to your sense of helplessness. Sometimes what we do never feels like enough. Thank you for sharing your experience and, if you haven't already, please join us on the FB group! Many other members also have family dealing with mobility issues (and specifically Parkinsons), hopefully we have some resources for you [smile] 
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Alwaysme00

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Posts: 3
Reply with quote  #4 
Hello

I just came across your post today and instantly went to follow your Facebook group. I'm 29 years old and a caregiver to my mother who was diagnosed with advanced stage lung cancer with brain mets. I'm also a wife and mother to 3 children who are ages 8, 10, and 13 years old. My only sibling moved to Tennessee about 8 months after my mother was diagnosed so I'm the only person she has.
I love that I'm getting this time with her and realize how lucky I am to still have her around, which is why I feel so crappy anytime I start to get annoyed or feel like I'm just here to be at everyone's beck an call. I guess I was just looking for a place to vent or someone who could relate to my situation.
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CaregiverCollective

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Posts: 3
Reply with quote  #5 
I'm so glad you reached out and joined our group, and thank you for sharing here what you're going through. Sounds like you have a lot on your plate! I'm sorry to hear about what your mom is dealing with, that has to be so tough. At the same time, I totally relate to that feeling of gratitude of being able to spend time together and have her there. I think it's important to acknowledge that just because the most important thing is in place, you still have your mom, doesn't mean it's all rosey. You can admit it's more complicated than that and that's okay. You may have noticed on our Facebook page that there are other members who are also the sole sibling responsible for their family member's care -- I really hope you share this info about yourself there so others can reach out to you, too!
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Alwaysme00

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Posts: 3
Reply with quote  #6 
Thank you and I most definitely will! It's great just knowing there are people that understand and have been there or currently there.
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goodgirl

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Posts: 6
Reply with quote  #7 
It is perfectly natural to get angry, sad, resentful sometimes. Sure, be grateful for your time together. But don't use that as a cudgel to punish yourself with when you feel anything but grateful. This stuff is HARD.


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Alwaysme00

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Posts: 3
Reply with quote  #8 
Thank you goodgirl. It is hard somedays are extremely hard!
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