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As Our Parents Grow Older > Message Board > Reconcilation Of A Sort (With My Eyes Wide Open)
 
 


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Sparkle
    11/03/09 at 04:47 AM
  Reply with quote#1

Okay-don't everyone panic, but I'm going to try to see my mom. And don't worry-my husband will be with me.
 
Here's whats happening. The last I heard from my uncle (her only living brother) he talked to her on the phone, and she has pretty bad dementia.  We think it may be ALZ according to the doctor, but as you know that can only be confirmed at autopsy for sure. (The end result is the same, whatever kind of dementia it is.) He had called earlier, but was told by my niece to call back later, as my mother had become disoriented and "fell in her plate." (I'm not sure if this was due to dementia or her blood sugar--most likely the low blood sugar.)
 
My mom reported to my uncle that the night before her bed "ate her up" and that she was sure her mother would get her a new one. (Her mom's been dead for many, many years.) And on it went... Very heartbreaking.
 
Here's my feeling, and please know that I have no illusions about this, and don't intend to be alone when I see her.
 
It has been one year since I last saw my mom, and I feel it was absolutely necessary to make both her and my brother see that I could not go another step. I will not take on any hands-on care of her. I will try to just be a daughter (something I've never had the opportunity to be) as I have felt responsible for her, and her happiness, all my life. Never got the nurturing and mothering I needed. No neglect-just typical N behavior.
 
And of course, most of you recall there was name calling of me at the end--and she was lucid when she said it. She always, always took Golden Boy's side in every situation, and that is not going to change.
 
All I plan to do is see her. If it works, I will drop in with my husband from time to time and visit. Period. That's it. I will go from "no contact" to "limited contact." If it gets too stressful or there are problems again, I'm done.
 
As you know, I love my mother deeply, and turning her care over to someone else has nearly killed me, But caring for her also nearly killed me.  My brother blamed me for her fall and my "inability to transport her safely" (though he never took her anywhere in 3 1/2 years.) And when he heard that my mom and I had words, he made immediate plans to remove her from the really nice AL facility that I decorated as nice as my home. All the doctors, NH staff, social workers, etc. said she needed an AL at the minimum, as she had broken her foot, opposite leg and went to a NH for rehab.  (She later broke her hip in the NH.) The hip required surgery, and very mild dementia became moderate after that.) She had every comfort, and GOOD food too! But as you probably also remember, he wants her house, and wasn't going to let it be sold to pay for the AL, once I wasn't in the picture anymore. He probably had her change her will too. Oh well...He then got a lady across the street to care for my mom originally, but her son got very sick, and she had to quit. Then he put almost all of her care on my niece, who desperately needs the very measly pay he gives. (He abuses her emotionally and drinks heavily after work everyday, according to her.)
 
He has gotten right in my mom's face and shouted, "I'm giving up everything to take care of you." (Yeah, right.) My mom said later to my niece that if they said anything about his behavior "it would be worse for them." So I call that emotional abuse as well.
 
Whether he will hit the roof when I try to visit, I don't know, but I plan to go when he's not there. Once long ago, he told my niece that perhaps if I visited, it would help our mom. But that was LONG ago, and before he started drinking constantly. He became enraged when I got my niece to read an email to my mom. He left her a text or some sort of message that said, "F--K you, backstabber." So yes, he's a doll...NOT.
 
But, it is still my mom's house, and I am still her daughter. I want to see her, and hug her, and tell her I love her. I don't expect anything in return.  I just need to do that. My heart is broken, but I know this was a necessary time of separation. I will not return to caring for her (under any circumstances), and I will not take her anywhere alone.
 
My husband and I told my brother when he removed her from the beautiful AL, not to call me in emergencies, or when someone did not show up, as this was his choice, and I would honor it, but I did not agree with it, and I could not go any further with her care. So he will remain on his own with that.
 
I will let you know how it goes. I feel in my spirit that this is the correct time, and that God is speaking to my heart to do this. I have learned so much here, and I will use every caution. I will not become trapped, but there is no victory in the story ending this way.  But I will not take any abuse from either of them. I will take one step at a time. My health is still not great, and my blood sugars are still not where they should be. I also have high blood pressure, high cholesterol, an irregular heartbeat, etc.  (I take 9 medications.) So I know to be careful, and to take care of myself.
 
This is the first time I feel peaceful about seeing her, and we will see if and when it comes about.  I am on good terms with my niece, but she is not dependable in her communication. She last said that she had "lots to report" and that as soon as she got the kids asleep, and her dad (my brother) off to work, she would email me. But that was Saturday afternoon, and I have still heard nothing, after numerous messages sent to her. So, I will have to coordinate this with her, at a time when my brother is not there. I won't try to keep it from him, I just don't want him there when I see her. Whether he will know ahead of time, I doubt. We'll see...
 
I don't know if they found cancer at the last exam she took. They had found a tumor so large that the scope would not go past it, so they had to make an incision in her stomach to finish the procedure. She also was having trouble eating.
 
They later said it was not cancer of the bowel, but they didn't know what it was, and would need to do further testing. I have not heard a word about the outcome of those tests either. It is so frustrating not knowing.
 
Again, don't worry. I have NO expectations, no pressure to do anything beyond visit. I will guard my heart and mind. This is something I must do.
 
My daughter, my husband and I will still be going to a house on the ocean for Christmas, and this will be only the 2nd time in my life that I have not been with my mom. But now we have a new tradition, and last Christmas with my husband (while my daughter was in England) was the most wonderful Christmas I've ever had. I will not go back to doing a family Christmas feast and big party. Those days are over for the extended family. I believe that my niece will do what she can. She has two lower elementary children. But I won't be there for it.
 
So, I will let you know how it goes...Stay tuned for possible fireworks from my brother (or maybe not...) I'll keep you posted, and if you pray, say a prayer that it goes well. I cannot live with never seeing her again, but I have learned so much this past year about how to protect myself. Believe me, I got it. But I know that Ns are full of surprises as well. So you never can be quite smart enough to completely outsmart them, can you? I will be on guard.
 
I thank everyone of you from the depths of my being. I will be careful, and I will have my husband with me.
 
Stay tuned...
 
Big Hugs-Sparkle
Sparkle
    11/03/09 at 04:50 AM
  Reply with quote#2

Sorry for spelling "reconciliation" wrong in the title. I need spell check for titles-LOL!

SUE
    11/03/09 at 05:23 AM
  Reply with quote#3

Dear Sparkle,

You must follow your heart and your intuition, I do hope that you will find the peace and the space to spend some time with your mother, and will be able to give her a reconciling and loving hug.

I will be thinking of you and so glad you will not be alone.

Love from Sue


Mary E.
    11/03/09 at 07:47 AM
  Reply with quote#4

Hi Sparkle!

This is an emotional and scary voyage you are about to embark on - but it sounds as if your faith and your inner strength (not to mention your husband) will guide you along.. 

I hope so much that it goes smoothly and that you come away from the visit feeling happy..

It's sad that your mother is going through so many health crises - I hope that in that ironic way - the Dementia will take away her realization of pain and might also have mellowed her personality? 

I hope that your brother isn't home when you visit - it seems that a confrontation with him and all of the "history" would take away from what you hope to feel at your meeting with your Mom..  I also hope that your neice comprehends all that you did over the years, and why your decision was so necessary. 

I sometimes feel that no matter how we try to explain - how our health is deteriorating - how we are trying to do our best but being sabotaged (the discharging of your Mom from the AL) and so on - others just don't and won't "get it" and wrap themselves up in a blanket of denial and turn against the ones who mean so well and are doing their very best.

So, good luck on your visit - and "keep a stiff upper lip" if someone is angry or resentful and taking it out on you.  I guess that now the tables are turned.  Remember that they don't understand and also think of us all here standing behind you, OK?  And please let us know what transpires!!
Lil
    11/03/09 at 07:59 AM
  Reply with quote#5

Hi Sparkle,
I am hoping for the best for you. It is hard to guess how someone will react after a long separation, perhaps even more so with dementia being a factor. 

It would be hard for me not to have expectations, and I would naturally be dreaming of loving actions and words and all sorts of good things in the initial reunion. But, justified or not, sometimes the old hurt perpetuates an unexpected anger--so I'd have to tell myself to be prepared to accept that if it were to be the case. I'd need to set my attitude accordingly...

Sparkle, I'm thinking that your going is a wonderful thing! Yet, I feel I want to ask you to guard your heart to accept whatever situation you find it to be --and make it all about love no matter what illness like dementia can bring?

Hugs Sparkle, and prayers too. :-)



Dustygirl01
    11/03/09 at 08:30 AM
  Reply with quote#6

Sparkle, you must do what you feel you need to do. Definitely go when your brother isn't there. I think you'll be fine since your niece and your husband will be with you.
NGA
    11/03/09 at 09:27 AM
  Reply with quote#7

Sparkle,

Words are failing me. I pray that God sends you an angel to shield and protect you.


Will I Survive
    11/03/09 at 10:14 AM
  Reply with quote#8

I think you have an excellent plan!  It is possible to forge a different relationship when you aren't the primary caregiver, and sometimes dementia actually will turn someone who was selfish and uncaring into a pleasant person for the most part. 

As someone who has gone no contact with my mother in the past (long before the dementia and for years at a time), I completely understand the mixed feelings that go along with it. 

I think you have realistic expectations of how a visit might go and you have your eyes wide open as to what may or may not happen.  I'm with you in spirit!
lindi143
    11/03/09 at 10:22 AM
  Reply with quote#9

Hi Sparkle,
I think you are going about htis the  right way and I think it will be fine since you have peace about it. Let us know how it goes
jeanine
    11/03/09 at 12:53 PM
  Reply with quote#10

Sparkle, dear, you must do what you feel is right, of course. Just be careful.
Don't get sucked into that black hole again.
HUGS!
((((Sparkle))))
Rachel B.
    11/03/09 at 04:20 PM
  Reply with quote#11

Hi Sparkle, 
   I definitely haven't been in your situation, but I sounds to me like you are doing this for YOURSELF, and I think that's great, since you have your eyes wide open.  I have a suggestion for you to think about.  Decide exactly what it is that you want to say to your Mom.  Think about what you would say to her if you knew this was your last chance.  Even practice the exact words, and the "order of importance".  
 
Don't put all the "power" in your mother's hands any more than anyone else's.  Yes, you have to see if she's hearing you, and make some allowances for her possibly being upset depending on what you're saying.  But you have a right to say what you feel & think too - more than a right, it's necessary.  Now seems to be the time.  In short, get done and said what YOU need to.  If you & Mom are able to go on from there, that's for another day. 
 
Of course, you can also reject this idea of mine.  Whatever happens, whatever you decide, I hope you find some peace.  Best wishes.    
 

Dustygirl01
    11/03/09 at 05:39 PM
  Reply with quote#12

Rachel B., that's a great idea.  It will give resolution to the situation.

If my NF was on his deathbed and wanted me there, I wouldn't go.  He's simply a drama queen to the end.  I guess this may sound cruel, but I don't need the resolution, I already have it.  He killed the relationship years ago.  Anything I did since then was because I thought I was obligated to do it or out of survival because I was a child.

Everyone is different and must do what they need to do for THEM.  You need to do what you can live with.  I won't subject myself to my NF again for any reason.  I promised myself that, 30 years too late, but it's a promise I'll keep.



Sparkle
    11/04/09 at 02:40 AM
  Reply with quote#13

Dustygirl: I totally agree with your solution to your situation, and if my mom had said some of the things that your dad has said to you, there would never be a reconciliation. Granted, she has said some things that hurt badly, and acted in all the famous "N" ways, and never really gave me any nurturing, emotional support, or empathy, but she never crossed as many lines as your father has. I totally support your stand, and feel it is the only way for you to go on and live a good life.

You are so right, every situation is different, and we all have to do what is right for us. The great thing about my situation now is that I made it no contact for a year, and I was able to get that separation that I've never had from my mother. I started to realize how unnatural it was to be so emotionally tied up with her every action. Like I once said, it was difficult to know where she ended, and I began. (Not that I thought or acted like her, because I did manage to become a very different type of person.) But because her approval, her happiness, her opinion, her everything was so important to my life. I HAD to break free from those chains, and allow myself to declare independence, not just in a physical way, but in an emotional one. NEVER has the time been even remotely right before this to even consider seeing her. But now it is, and I have no real expectations...only to obey what I feel God is telling me to do at this point. Just one step at a time. I will not take on the false responsibility anymore. My husband told my brother a year ago, that if he took her out of the Assisted Living, he was on his own, because there was no need for that, and I could not go back to the way things were. And believe me, I will not.

(((((((((((((((((((((((((Dustygirl)))))))))))))))) )))))))))

Please don't think for a moment that anyone thinks anything about you, except that you are wonderful, and you've done what you needed to to stay healthy and survive. And we want more than survival now, don't we? We want a life!!!!! Right?????

Your father was horrible to you, and my mother was none too kind either. Everyone of us has to walk our own path and do what is right for us, and please know that if this becomes too stressful because of any mistreatment, I will go right back to no contact. In some ways, it's my brother that I fear the most, as he is drinking heavily, and bitterly jealous of me, for no reason. He HATES me, and I've never done anything but love him. I want my husband there, so that he can not be alone with me, as my health can't take another confrontation with him, or anyone else for that matter.

I cannot tell you, (all of you) how much my desire to read this board, and read discussions about narcissism has made me understand so much, and see clearly the situation. Thank the Lord for this board, and for those of us that can support each other, as we walk this crazy journey. I now understand boundaries, and taking care of myself--not just others. My problem was that before this separation, there was no way out. No one would help or listen, and they would have let me die caring for her. No one (but my husband) cared what a toll this was taking on me. I could never have escaped alive, but for the no contact, and I know it was the right decision. Please know that even now, it will be limited contact, and with safe boundaries.

I know that when I read Jeanine's posts, I know I could NEVER do what she is doing, but we are all different, with different situations. The main thing is, we love and support each other. I love reading about Goodwillgal's limited contact (which is the only solution for her) and Prodigal's strategies, and Sue's struggles, etc. This is definitely not a "one size fits all" road trip, and we can all learn from the experiences of each other.

What you said about taking care of your boyfriend was so great. Even difficult things are not so bad when there's love and appreciation, instead of demands, and ungratefulness, and great expectations. You are doing everything right.

I feel so close to you especially, because we started our scenario at just about the same exact time. And both of our lives improved greatly from our no contact. It's just that I've nearly grieved myself to death, because I truly always loved my mother deeply. It's a different dynamic with your dad, and I understand totally.

Well, I still have not heard one word from my niece--no return phone calls, so I'm wondering if she even has the same number, and so far no email with "lots to report" that was promised on Saturday afternoon. LOL!

So nothing has happened yet. I have to talk with her first, and arrange a time when my brother is at work. I just hope that he won't take it out on her, if I go visit. But I have a right to.

I'll keep you all posted if I ever hear from my elusive niece.  I'm almost ready to strangle her for not getting in touch with me, but she may have a different number. When all else fails, there's MySpace.   Hopefully, she'll call or email me soon. She means well, and has 2 little ones to keep up with. I just thank God that she has been there for my mom in the last year.

Hugs To Everyone, and Peace For Doing What's Right For Us...Sparkle

2nd kathy
    11/04/09 at 12:08 PM
  Reply with quote#14

Thinking of you Sparkle and praying for the outcome you need. I hope above all that your decision brings you the peace you deserve and that you are protected physically and emotionally as you do what you feel needs to be done. ((HUGS))

Dustygirl01
    11/04/09 at 12:35 PM
  Reply with quote#15

Sparkle...thanks so much for the kind words.  We are both coming up on our one year anniversary!  Wow...we sure have learned a lot!  You've come so far.  You are operating from a place of knowledge, clarity and strength now.   You have the tools to make the decisions that are right for you.  You are operating from a place of power now.

Keep us posted.

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