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Mary E.
Hi Carol Ann,

Have you asked what meds your mother is on and what the doses are?  When my mother came home from the rehab in August, her Ativan instructions on the bottle said, one every 8 hours as needed.  My mother had taken Ativan for years to sleep, but only 1mg in the late evening..

I don't know it this was an error or if it's common to give agitated people (she was constantly asking to go home) more anti-anxiety meds than they need and which might actually cause problems like sleeping too much, having hallucinations, etc.

When she came home my brother thought we could follow the label directions and gave her an extra Ativan one night.  The next morning she was waking-dreaming.  She had had a vivid dream and upon waking thought it was still happening. 

We also had a neighbor who was in the permanent part of the NH while my mother was there for rehab.  She was in a kind of daze, yet knew who I was when my mother and I stopped to see her.. She asked for my husband, also..  Yet she couldn't walk and was being spoon fed for no explainable reason.  She was evaluated for being over medicated and became more clear headed..   

So, in addition to asking about infections (infections of any sort can cause extra confusion), I would check the meds.
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Mary E.
Hi Gloria,

I just realized that Carol Ann's post was from last year.

My mother sounds a lot like yours.  She doesn't want to get up - says she's so comfortable in bed..  Her health aides let her have "an extra 10 minutes" over and over, but then convince her to get up and wash and dress..  I think that if I let her lie there all day and told the aides that this was what she wanted - she would "think" she loved it.

The problem, of course, is that she could form clots from being bed-bound, would lose all muscle tone (has little enough as it is), develop congestion in her lungs, and soon would HAVE to go to a NH, because the aides, my brother, and I couldn't lift her to shower her or use the commode.. 

I think that sometimes they don't comprehend the consequences of not getting up.  They only want to be where it's comfy and warm and although they have certainly earned the "luxury" of staying in bed, I'm not sure they comprehend that at their age, they have to keep going or life as they know it will be over.   I know my mother WANTS to stay home, so she has to get up and keep going or she won't be able to stay home.  My mother can't follow this - so I think I have to encourage her as gently as I can...
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My mother is 74 with dementia. She also has neuropathy so she can't walk. Her hands are so snarled up and she can't feed herself. She doesn't know me, her daughter, anymore.
 
This morning she refused to eat because she was sleepy. She is in a nursing home. Daddy went back to see her, this afternoon, she slept the whole time he was there. Don't know whether this is a sign that she is getting worse or what. All I know is this is a cruel disease!
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tamara, you are right, this is an ugly disease. i'm sorry for you that your mom has reached the point of not knowing you. that is heartbreaking. does she remember your dad?
have you talked to the staff at the nursing home about whether there have been any med changes? is she sleeping through the night or having restless wakeful times? how long have you been noticing these changes? hang in there. sometimes weekends are slow, but people will be along to talk to you.
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Will I Survive

Carol Ann wrote:
Been here, but busy life, and keep returning for help.... I have an important question and need to know if anyone knows or has had issues with this:

Mom has dementia for several years, been in NH for almost 2 years and seems to be getting worse....she will not get out of bed, lays sideways in the bed with legs and head off each end.  She will get up with force, but will slump back down and go back to sleep.    She refuses to get dressed or go to the dining room, and wants her food in her room.   Each time I visit her, she is fast asleep in crazy ways in the bed.

She is almost 80 years old.  With Dementia for several years.

Please give me any information from anyone on this.

Thank you so much, Carol Ann

My mother isn't lethargic at all (quite the opposite), but she sleeps JUST LIKE YOURS.  When I watch my mother try to lay on the bed and especially if I try to guide her, it seems like she's forgotten how to get in bed.  About a year ago while she was still at home, she had one leg on the bed and one foot on the floor. 

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No medication change, but she has to be medicated or she thinks she can walk, one episode lead to the emergency room. She gets very agitated when not medicated, almost violent.

 My mother seems more advanced in her dementia than others I am reading about. She has to wear adult diapers and can't hold a glass to drink out of. She either talks about dead relatives or will ask you a question and you have to ask who or what and she says she doesn't know.
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lindi143
HI, My mom has demetia and at times sleeps a lot. She is now in the NH so I am trying to get my life back together. I know waht you mean, it is so strange to visit. Somedays she knows I am somebody but not who and others she has not idea who I am. Her stuff dissappears too( that as on  anther thread) but I was told that it would , it is the main problem at her NH for dementia patients.
Anyway, I would see if they changer her medicine and also sometimes they wan themt o sleep alot if they are having trouble with them or if they are understaffed.
Good luck and hugs.
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I care for my sister who has severe dementia, which is constantly progressing.
She is almost 84.
She would sleep all the time if allowed. Her memory is so short that she doesn't know that she just got out of bed. If not constantly monitored she goes right back to bed. It can happen within minutes. Today she dressed and undressed 3 times in a row. Each time I left the room and returned she was ready for bed again.
She also seems to have no knowledge of time whether it is morning, noon, or nighttime.
She has had dementia for more than 8 years but it worsens all of the time.
She now sleeps at the top of her bed from side to side. If you tell her to or help her to put her head at the top when you return she is back in the sideways position.
When she turns down the sheet to climb into bed she moves her pillow to the side.
I don't think it is that she has difficulty getting into bed. I think she now just thinks that this is the position in which you should sleep in a bed. If you explain the correct position it is forgotten immediately.  
It is extremely sad to watch the deterioration and progression of this disease.
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Hello Everyone, my Mom too has dementia.  She has had it for the past 5 years but has gotten really bad over the last year and a half.  Her sleeping patterns are kind of crazy.  Some nights she talks all night long and sleeps half the day.  Over the last couple of days she has been sleeping all night and not getting up until late in the afternoon.  I wonder should I wake her because I do fear of dehydration.  But like the one post says you hate to do that when they are sleeping so sound.  My brother, sister and I have moved in together with Mom to help with her care.  We are trying.  I just hope we are doing the right things.  She is comfortable and when she is awake is pretty happy.  Especially if music is on.  She tries to dance and doesn't miss a beat.  These moments however seam to be few and far between lately.  Sorry for rambling on and on but I am happy to have stumbled across this site.  I need to see how others are handling this horrible disease.  It truly is heartwrenching. 

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I take care of my mother at her home.  I am with her 24/7.  She is the advanced stage of dementia and sleeps a lot now. I do not, nor cannot get her up. She doesn't want to eat when she is tired, so I wait for her to get up. Now, she gets up between 4-5pm, has breakfast, falls asleep at the table, then I transfer her to her multi-positional recliner.  She sleeps peacefully for a few hours, then she eats dinner. She normally goes to bed around 11pm. I am taking care of her so that she will be peaceful and calm, knowing that she is in a loving environment. I am well aware that her body is slowly preparing for her death.  I pray for the grace of a happy death for her.  God bless you.  

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I also take care of my elderly mother who has dementia, and she sleeps quite a bit.  She is 74 and has many other health issues.  I also have a husband is a cancer survior (thoart cancer)and he can not live with me since my mother smokes. I am looking for some support (free) since my siblings live a 1000 miles away. I really would like to have an afternoon or morning off to spend some time with my hubby.  Not sure where to find the resoureses.  I check the web and there all kinds of links.. but not really finding anything.  Help would be greatly appreciate it.  We live in Jacksonville Fl. Duval County.

Thanks in advance
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My Mother has advanced dementia and I find that she is sleeping an awful lot lately - she also has disbetes and is eting less & less every day - I am concerned and will viit with her doctor but was just curious if this is a normal process or if I should be doing something more to keep her interested in life??



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Insanity
My mother has advancing dementia. Not sure if your mother is capable of this at the stage she is in, but the best thing I ever did was get my Mom involved in an adult day program. She has been in two now (we moved), both operated by Continuing Care Communities with religious affiliation. But there are lots of various programs to chose from in our area. Several are run by a non-profit but use church facilities.

She chats away with others in similar circumstances. They do chair exercises, sing hymns, play Bingo, arts & crafts.... Some participate more than others. 

It keeps her awake most of the day. (They "rest" after lunch.) Keeps her mind as active as possible and keeps her around other people. She never can remember what went on, only that she had a good time.

Prior to living with me, she had been living with my sister and dozing off in a chair most of the day. She didn't know whether it was night or day most of the time. She had lost so much muscle tone that she could barely walk and it was a struggle to get out of a chair. 

I realize that one day she will not be able to participate even at this level and will likely spend most of her time sleeping. When that happens, she will no longer attend the day program. 

But until then, it has been a lifesaver for her and me. There is no way I could keep her entertained and engaged the way they do for hours on end. 

Plus, given her N tendencies, she loves the attention and the fussing over her. One of her favorite conversational gambits is, "Guess how old I am?"
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God Bless you all!

I too am taking care of elderly parent with dementia and COPD.  She is sleeping alot and have to wake her to feed/change/hydrate etc.

It's a challenge but God has granted us the responsibility to see to it we care for them until the end.

Have faith...share your emotions and challenges ....and above all ....

take care of them the best you can....they earned it...

I'm honored that God has chosen me to be her Guardian.....
when you can take care of yourself...
Love and Hugs
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Hey Carol,

Don't fret baby doll. I am just so thankful she has you to care. I have been dealing with my Aunt for a year now. She as well sleeps most of the time and is up all hours of the night. The only good thing is...she rolls around or lays this way and that. If she laid in the same spot all the time she would get bed sores. We have bathing issues as well. I had read that the potty problems are because they don't know they have to go until it is to late. The eating problems...don't know if their stomach hurts because they are hungry or full. The sad thing is that they can live a long time with dementia as long as they eat, drink, poop and pee. But they have no quality of life. I have tried everything to get her out to go somewhere but she refuses. I also take care of her husband he is 88 and still knows what is going on but isn't physically able to get around but is willing to. My Aunt is only 70 but the Doctors didn't tell us she had symptoms at 65. Her daughter couldn't stand cleaning up the poop off the floor because she refused to wear the panties so she left her, and her husband could not help her because he can barely help himself.

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